Health Care Guidelines Links 

Health Care Guidelines User-Friendly Chart

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Down Syndrome Growth Chart Links
Growth charts for children with Down syndrome in the United States are available for download below. These charts can help health care providers monitor growth among children with Down syndrome and assess how well a child with Down syndrome is growing when compared to peers with Down syndrome.  

To access the most recent Centers for Disease Control Growth Charts, click here: https://www.cdc.gov/ncbddd/birthdefects/downsyndrome/growth-charts.html


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New Down Syndrome Growth Charts Released
As of Oct. 30, 2015, researchers have developed new growth charts for children with Down syndrome to replace charts dating back to 1988. Since the charts were first released, weight gain for children under 3 years has improved, and height for males ages 2-18 years has increased, according to a new report. “Clinicians will find the charts extremely useful for monitoring trends in weight and height,” said Dr. Bull, a member of the American Academy of Pediatrics’ Council on Children with Disabilities. “Any child found longitudinally who crosses percentiles warrants careful assessment.”

Here are some articles you might be interested in reading:

https://www.aappublications.org/news/2015/10/30/GrowthCharts103015 
https://pediatrics.aappublications.org/content/128/2/393.full
https://www.ndsccenter.org/wp-content/uploads/AAP-Guidelines.pdf
https://www.ndsccenter.org/wp-content/uploads/AAP-Health-Care-Information-for-Families-of-Children-with-Down-Syndrome.pdf



Breastfeeding and Down Syndrome
Julia’s Way is a 501c3 whose breastfeeding project focuses on inspiring and encouraging mothers of children with Down syndrome to breastfeed their babies, as well as on educating medical professionals on how to support mothers to help their babies breastfeed successfully.   

Julia’s Way partnered with Down Syndrome Pregnancy to distribute their book “Breastfeeding & Down Syndrome: a Comprehensive Guide for Mothers and Medical Professionals.” This book is the first of its kind and provides comprehensive, evidence-based information for both mothers and medical professionals. The book is written in an easy-to-read style by medical experts and addresses everything from how to prepare prenatally to breastfeeding after heart surgery to how to transition a baby from tube feeds to the breast. 

Because Julia’s Way has a deep commitment to helping mothers breastfeed their babies with Down syndrome, their book is available as a FREE DOWNLOAD. Proceeds from any print copies go directly to Julia’s Way to help continue their work supporting mothers who want to breastfeed their babies with Down syndrome. https://juliasway.org/ 




Julia’s Way also has a list of other breastfeeding resources available online: https://juliasway.org/breastfeedingresources



Juila's Way

breastfeeding resources

NDSS: A Promising Future Together

 


NDSC: A New Parent’s Guide




What Parents Wished They’d Known Link




Sibling Packet




Grandparent Packet








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People First Language

What is Person/People First Language? How do I refer to someone who has Down syndrome? 

People First Language was developed to respectfully speak about people with disabilities. The number one focus of PFL is putting the person before his/her disability because the disability is only a small part of the whole person. PFL highlights a person’s strengths, abilities, and potential to succeed instead of labeling the individual or confining the person to an established stereotype.

Remember: concentrate on the person, not the disability! We say “a person with Down syndrome” – not a Down’s person.

To ensure inclusion, freedom, and respect for all, it's time to embrace People First Language



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The Down Syndrome Association of Central Kentucky exists to celebrate our Down syndrome community, support individuals with Down syndrome and their families in our region, and educate ourselves and others about the true joys and challenges of Down syndrome.

Our Mission

We envision communities where people with Down syndrome are valued and included throughout their lives.

Our Vision

We support and educate families and professionals in Central and Eastern Kentucky. We do this through: providing customized presentations for parents, teachers, therapists, and medical professionals; publishing a quarterly magazine that celebrates accomplishments of individuals with Down syndrome and provides pertinent information for families and caregivers; providing peer presentations to schools, post-graduate and undergraduate classes, and the community about acceptance of those with Down syndrome and other disabilities; and hosting several celebrations throughout the year to bring together families and friends for support and advocacy. 

Our Impact

The Down Syndrome Association of Central Kentucky has been helping and supporting families since 1993, when a small group of parents envisioned better opportunities for their children with Down syndrome. Today, that vision and our organization have expanded, enabling us to provide numerous programs and services.

Learn more about The Down Syndrome Association of Central Kentucky