The Down Syndrome Association of Central Kentucky is a registered 501(c)3) organization that has been helping and supporting families since 1993, when a small group of parents envisioned better opportunities for their children with Down syndrome. Today, that vision and our organization have expanded, enabling us to offer a range of programs and services completely free to our students and their families.
The Down Syndrome Association of Central Kentucky
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One in every 772 live born babies in the United States is born with Down syndrome, making Down syndrome the most common chromosomal condition.
This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.
Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21.
In every cell in the human body there is a nucleus where genetic material is stored in genes. Genes carry the codes responsible for all of our inherited traits and are grouped along rod-like structures called chromosomes. Typically, the nucleus of each cell contains 23 pairs of chromosomes, half of which are inherited from each parent.
What is Down Syndrome?
The incidence of births of children with Down syndrome increases with the age of the mother. But due to higher fertility rates in younger women, 80 percent of children with Down syndrome are born to women under 35 years of age.
People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer’s disease, childhood leukemia, and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives.
A few of the common physical traits of Down syndrome are: low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.
Life expectancy for people with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today.
People with Down syndrome attend school, work, participate in decisions that affect them, have meaningful relationships, vote, and contribute to society in many wonderful ways.
All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.
Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends, and the community enable people with Down syndrome to lead fulfilling and productive lives.
From the National Down Syndrome Society
Facts About
Down Syndrome
The Down Syndrome Association of Central Kentucky exists to celebrate our Down syndrome community, support individuals with Down syndrome and their families in our region, and educate ourselves and others about the true joys and challenges of Down syndrome.
Our Mission
Our Impact
We believe no one should ever stop learning, that's why we provide life-changing programs such a cooking, tutoring, book clubs, summer programs and more for students with Down syndrome. In addition, we support and educate families and professionals in Central and Eastern Kentucky. We do this through: providing customized presentations for parents, teachers, therapists, and medical professionals; publishing a quarterly magazine that celebrates accomplishments of individuals with Down syndrome and provides pertinent information for families and caregivers; providing peer presentations to schools, post-graduate and undergraduate classes, and the community about acceptance of those with Down syndrome and other disabilities; and hosting several celebrations throughout the year to bring together families and friends for support and advocacy. Every program and resource we provide is free-of-charge to our families.
World Down Syndrome Day
Because individuals with Down syndrome have three copies of chromosome 21, World Down Syndrome Day is celebrated on the 21st day of the third month. This day – recognized by the United Nations General Assembly – is an opportunity for the entire Down syndrome community to come together to celebrate those with Down syndrome, while also educating and spreading awareness.
Whether we go to Frankfort to raise awareness among our state’s legislators, observe the day closer to home with fun activities, or just wear our crazy socks, DSACK joins the celebration each year. Keep watch for announcements about how you can make a difference on this important day.
March 21
2026 Details to be Announced
Executive Director
In 1997, I thought my world had turned upside down. Turns out, it had actually turned right side up! My husband and I have five children; our fourth child, Emily Faith, was born with Down syndrome. Due to Emily’s significant medical needs, we felt it best for me to put my career on hold for the foreseeable future to care for her and our other children. Up until this time, I had had no exposure to anyone with Down syndrome or major medical needs. It was a time of uncertainty and tremendous stress. Due to her heart condition, we could not take Emily out in public and there was no home internet at the time. It was a very isolating time, as I truly thought Emily was the only person with Down syndrome in our area.
When Emily was almost three, her then speech-language pathologist asked if we were involved with the local Down Syndrome Association of Central Kentucky. I quickly became involved and volunteered in several different capacities, becoming the Executive Director in 2014. My passion for DSACK stems from those days of isolation and fear for Emily’s future. That passion drives me to ensure no family feels alone, that we become a community to support one another, educate others, and celebrate every victory together.
It is my great joy and honor to be invited to speak regularly at universities, elementary, middle and high schools, churches, and other community organizations on topics related to Down syndrome and inclusion. In addition to my work with DSACK, I serve on the Governor-appointed Special Advisory Panel for Exceptional Children, and I am on the board of Life Plan of Kentucky. I stay busy with my four grandchildren, love to read, and enjoy playing the piano.
Traci Brewer
Director of Medical & Community Outreach
I earned my Bachelor of Arts in English and Secondary Education from Bellarmine University, where I also played soccer for the Bellarmine Lady Knights. During college, I was awarded a full scholarship to study abroad as an English-Speaking Union Scholar at the University of Oxford, and I also lived and worked in Schweinfurt, Germany for a summer. I graduated summa cum laude, gave the Valedictorian Address, and was awarded Bellarmine’s prestigious Wilson Wyatt Fellowship of Academic Excellence Award. After teaching English and coaching soccer at Assumption High School in Louisville and being Coordinator of Bellarmine’s Low Ropes Challenge Course, I earned a Full Fellowship at the University of Kentucky, where I earned my Master of Science in Educational Policy Studies with an Emphasis in Student Affairs. Over the years, I served as Assistant Dean/Director of Student Activities at Bellarmine University and in various volunteer roles with my church, DSACK, and the community.
I chose to stay home to nurture our family. My husband Dennis and I have four children. Our son Sam has Down syndrome. In my spare time over the years, I have jumped out of a plane, dabbled in writing and public speaking, and completed the Dublin, Ireland Marathon and numerous half marathons and relays for various charities. I enjoy spending time outdoors with my loved ones hiking, gardening, jogging, cheering at our children’s soccer games, and listening to live music and sitting around a campfire.
Courtney Elbert
Director of Education
I am a native of Kentucky, having lived here my entire life. I have a background in special education, earning my Bachelor's of Science in Special Education and my Master's of Science in Special Education: Moderate and Severe Disabilities at the University of Kentucky.
I have taught special education in the local school system. I am passionate about creating an engaging, equal opportunity learning experience for all students related to academic, functional, and social development.
At DSACK, my primary focus is our free tutoring program, which I coordinate, as well as the events and programs for elementary-age students and younger.
In my free time, I enjoy spending time with my wife, friends, and family.
Elaine Burns
Director of Philanthropy
With a Bachelor's degree in Healthcare Administration and nearly a decade of experience in both local and global nonprofit work, I’ve dedicated my career to serving others and helping improve lives through meaningful, purpose-driven work.
As a lifelong resident of Lexington, Kentucky, I’m deeply committed to making a meaningful impact close to home. My decision to join DSACK was driven by a heartfelt desire to contribute to supporting individuals with Down syndrome and their families. It’s a cause that resonates personally, as I’m blessed to have a relative with Down syndrome.
Outside of work, I’m a proud mother to a recent college graduate, an aunt to four nieces and one nephew, and the wife of one of my high school best friends and now husband. I’m grateful for the opportunity to contribute to DSACK’s mission and to be part of a team that is truly making a difference in the lives of others.
Trish Mars
Office Coordinator
Drawn to the organization's mission and the dedication of its staff to celebrate and improve the lives of all individuals, I joined DSACK's team as the office coordinator. I hold graduate degrees in both education and biology, and I believe in the power of collaboration to bring about positive change. Having previously worked as an educator with other Lexington-based nonprofit organizations, I am deeply committed to building communities in which children and families are valued, supported, and experience a strong sense of belonging.
I enjoy spending time with my three boys, husband, and two spirited dogs. I love being outdoors—whether it's playing in my flower garden, hiking in green spaces, or cheering from the sidelines of a soccer field.
Kathryn Wallingford
Administrative Assistant
I have worked at DSACK since completing the We Work! Career Planning Initiative in 2016. I moved to Lexington in 2015 from Camden, Arkansas, where I graduated from Camden Fairview High School.
I am the administrative assistant with a lot of responsibilities. I love what I do in preparing for meetings, taking notes, and helping create the website. I also help with routine office tasks, represent DSACK at events, take on special projects, and advocate for people with Down syndrome. I work three hours, two days a week. I am so proud of working for DSACK.
Emily Wright
Board of Directors
Margot Schenning, ChairPerson
Teacher-The Lexington School
Caryn Sorge, Chair-Elect
Parent of a Child with Down Syndrome
Pediatric Oncologist at University of Kentucky
Lee Ann Mullis, Treasurer
Parent of a Child with Down Syndrome
CFO at Stewart Home and School
Shawn Fear, Secretary
Parent of a Child with Down Syndrome
Retired from ConAgra Foods
Christopher Azbell
Otolaryngologist at UK Healthcare
Jessica Bosley
Family Member
SLP-Lexington Hearing & Speech
Anna Bullard
Social Worker at UK Children's Hospital
Elizabeth Clevinger
Parent of a Child with Down Syndrome
Counsel for Tax & Risk at Valvoline
Nikki Davidson
Pediatric Neurologist at Baptist Health/Pediatrix
Corey Hawes
Pediatric Dietitian at UK Children's Hospital
Vinay Patel
Parent of a Child with Down Syndrome
School Counselor-Jessamine County
Stephanie Taylor
Parent of a Child with Down Syndrome
Project Manager at Messer Construction
Mike Wedding
Parent of a Child with Down Syndrome
Project Manager at Messer Construction
© 2022 Down Syndrome Association of Central Kentucky