The Down Syndrome Association of Central Kentucky is a registered 501(c)3) organization that has been helping and supporting families since 1993, when a small group of parents envisioned better opportunities for their children with Down syndrome. Today, that vision and our organization have expanded, enabling us to offer a range of programs and services completely free to our students and their families.
The Down Syndrome Association of Central Kentucky
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One in every 772 live born babies in the United States is born with Down syndrome, making Down syndrome the most common chromosomal condition.
This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.
Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21.
In every cell in the human body there is a nucleus where genetic material is stored in genes. Genes carry the codes responsible for all of our inherited traits and are grouped along rod-like structures called chromosomes. Typically, the nucleus of each cell contains 23 pairs of chromosomes, half of which are inherited from each parent.
What is Down Syndrome?
The incidence of births of children with Down syndrome increases with the age of the mother. But due to higher fertility rates in younger women, 80 percent of children with Down syndrome are born to women under 35 years of age.
People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer’s disease, childhood leukemia, and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives.
A few of the common physical traits of Down syndrome are: low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.
Life expectancy for people with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today.
People with Down syndrome attend school, work, participate in decisions that affect them, have meaningful relationships, vote, and contribute to society in many wonderful ways.
All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.
Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends, and the community enable people with Down syndrome to lead fulfilling and productive lives.
From the National Down Syndrome Society
Facts About
Down Syndrome
The Down Syndrome Association of Central Kentucky exists to celebrate our Down syndrome community, support individuals with Down syndrome and their families in our region, and educate ourselves and others about the true joys and challenges of Down syndrome.
Our Mission
Our Impact
We believe no one should ever stop learning, that's why we provide life-changing programs such a cooking, tutoring, book clubs, summer programs and more for students with Down syndrome. In addition, we support and educate families and professionals in Central and Eastern Kentucky. We do this through: providing customized presentations for parents, teachers, therapists, and medical professionals; publishing a quarterly magazine that celebrates accomplishments of individuals with Down syndrome and provides pertinent information for families and caregivers; providing peer presentations to schools, post-graduate and undergraduate classes, and the community about acceptance of those with Down syndrome and other disabilities; and hosting several celebrations throughout the year to bring together families and friends for support and advocacy. Every program and resource we provide is free-of-charge to our families.
World Down Syndrome Day
Because individuals with Down syndrome have three copies of chromosome 21, World Down Syndrome Day is celebrated on the 21st day of the third month. This day – recognized by the United Nations General Assembly – is an opportunity for the entire Down syndrome community to come together to celebrate those with Down syndrome, while also educating and spreading awareness.
Whether we go to Frankfort to raise awareness among our state’s legislators, observe the day closer to home with fun activities, or just wear our crazy socks, DSACK joins the celebration each year. Keep watch for announcements about how you can make a difference on this important day.
March 21
Join us on March 21 for our first art exhibit-More Alike Than Different!-at the Living Arts and Science Center.
Admission is free from 10 am-2 pm.
Executive Director
In 1997, I thought my world had turned upside down. Turns out, it had actually turned right side up! My husband and I have five children; our fourth child, Emily Faith, was born with Down syndrome. Due to Emily’s significant medical needs, we felt it best for me to put my career on hold for the foreseeable future to care for her and our other children. Up until this time, I had had no exposure to anyone with Down syndrome or major medical needs. It was a time of uncertainty and tremendous stress. Due to her heart condition, we could not take Emily out in public and there was no home internet at the time. It was a very isolating time, as I truly thought Emily was the only person with Down syndrome in our area.
When Emily was almost three, her then speech-language pathologist asked if we were involved with the local Down Syndrome Association of Central Kentucky. I quickly became involved and volunteered in several different capacities, becoming the Executive Director in 2014. My passion for DSACK stems from those days of isolation and fear for Emily’s future. That passion drives me to ensure no family feels alone, that we become a community to support one another, educate others, and celebrate every victory together.
It is my great joy and honor to be invited to speak regularly at universities, elementary, middle and high schools, churches, and other community organizations on topics related to Down syndrome and inclusion. In addition to my work with DSACK, I serve on the Governor-appointed Special Advisory Panel for Exceptional Children, and I am on the board of Life Plan of Kentucky. I stay busy with my four grandchildren, love to read, and enjoy playing the piano.
Traci Brewer
Art Therapist
My professional journey is rooted in connection, creative expression, and creating a space where every person is encouraged, supported, and celebrated for who they are. I hold a Bachelor of Fine Arts from the University of Cincinnati and a Master of Education in Special Education from Xavier University. My relationship with DSACK began in 2017 when I started offering art instruction in their programming. Over the years, I saw how powerful artmaking was in building our students' confidence, communication, and connection. That experience inspired me to expand my skills and return to school, where I earned my Master of Arts in Art Therapy from Cedar Crest College in 2026. Today, I integrate clinically informed artmaking within a mental health framework as the art therapist for DSACK.
I am a Licensed Professional Art Therapy Associate (LPATA) through the Kentucky Board of Licensure for Professional Art Therapists and a Registered Art Therapist-Provisional (ATR-P) through the Art Therapy Credentials Board. I provide services under board-approved clinical supervision.
In my free time, you’ll find me hiking creek trails with my family, looking for nature treasures, reading, and making my own art. My favorite art mediums include fiber art, watercolors, and eco printing.
Jill Isenhour
Director of Medical Outreach and Family Services
I hold a Master of Arts in Human Services with a concentration in Marriage and Family and bring both professional training and personal experience to DSACK.
As a mother of a child with Down syndrome, I am deeply passionate about supporting families as they navigate the medical and developmental journey. I am committed to walking alongside parents with compassion and practical guidance while also working to educate and equip medical providers and community professionals to better serve individuals with Down syndrome. I value connection, advocacy, and building bridges between families and the systems that support them. I am honored to be part of a community that uplifts, empowers, and celebrates individuals with Down syndrome and their families.
I live in Central Kentucky with my husband and our three children. My family is my greatest joy and the foundation of my work. My personal journey with Down syndrome has given me a deep understanding of the emotional and medical complexities families face, and it fuels my commitment to ensuring no family feels alone in that process.
Abby Johnson
Director of Education
I am a native of Kentucky, having lived here my entire life. I have a background in special education, earning my Bachelor's of Science in Special Education and my Master's of Science in Special Education: Moderate and Severe Disabilities at the University of Kentucky.
I have taught special education in the local school system. I am passionate about creating an engaging, equal opportunity learning experience for all students related to academic, functional, and social development.
At DSACK, my primary focus is our free tutoring program, which I coordinate, as well as the events and programs for elementary-age students and younger.
In my free time, I enjoy spending time with my wife, friends, and family.
Elaine Burns
Director of Philanthropy
My professional background has been primarily dedicated to advocating for and with individuals with intellectual and developmental disabilities (I/DD). My passion for this work began through my relationship with my sister-in-law, Ava, who has Down syndrome and has been involved with DSACK throughout her life. Getting to know her sparked my commitment to supporting the rights, opportunities, and inclusion of individuals with I/DD.
Throughout my career, I have focused on creating coalitions among disability service groups to amplify their collective voices. I am proudest of the work I have done training individuals with Down syndrome on legislative processes and empowering them to advocate directly with lawmakers.
I hold a master's degree in development and government policy from the University of Kentucky’s Patterson School. As Director of Policy & Research for the Commonwealth Council on Developmental Disabilities, I focused on building relationships with members of Kentucky’s General Assembly and uniting diverse partners behind shared policy goals. Chief among those goals was to advance laws that protect the rights and well-being of people with disabilities.
I am beyond thrilled to be the DSACK's Director of Philanthropy. This role brings together the skills and passions I have cultivated throughout my personal, academic, and professional journey.
Justin Jeter
Education Assistant
My passion for working with individuals with Down syndrome began more than 30 years ago, when I was offered a life-changing position as the caregiver for an amazing individual. I started a job I truly loved and gained the eye-opening experience of seeing the world through the eyes of someone who wanted the same opportunities as others his age to live a fulfilling life and make a difference, not only for himself but for those around him. I strongly believe that working with and building meaningful relationships with individuals with Down syndrome has shaped me as a person. It has given me a deep passion for helping them succeed and filled a place in my heart I never knew existed until I began this incredible journey.
I’m also a proud mother of twins and have two wonderful stepchildren. I enjoy spending time at home with my husband and our two dogs. I love being outdoors, whether I’m relaxing on the patio or walking the dogs. I also love cooking, reading, listening to music, and all things Halloween.
Crystal Stone
My passion for working with individuals with Down syndrome began more than 30 years ago, when I was offered a life-changing position as the caregiver for an amazing individual. I started a job I truly loved and gained the eye-opening experience of seeing the world through the eyes of someone who wanted the same opportunities as others his age to live a fulfilling life and make a difference, not only for himself but for those around him. I strongly believe that working with and building meaningful relationships with individuals with Down syndrome has shaped me as a person. It has given me a deep passion for helping them succeed and filled a place in my heart I never knew existed until I began this incredible journey.
I’m also a proud mother of twins and have two wonderful stepchildren. I enjoy spending time at home with my husband and our two dogs. I love being outdoors, whether I’m relaxing on the patio or walking the dogs. I also love cooking, reading, listening to music, and all things Halloween.
Office Coordinator
Stephanie Moore
I am very grateful to be a part of the DSACK team, coming on board as bookkeeper and now assuming the role of office coordinator. I hold an undergraduate degree in mathematics from Centre College and a Master's in Business from the University of Kentucky and worked in non-profit administration before beginning my most rewarding adventure of motherhood. Being very involved in early educational activities, I found a passion for preschool education and spent 8 years in that arena while continuing to nurture and guide my sweet family. Unexpected life events led to my early retirement from teaching and I am overjoyed to start this new chapter with DSACK. I have always thrived on being approachable, helpful, and inclusive and look forward to using these gifts to connect and celebrate all DSACK families.
I enjoy laughing with, and loving on, my family, friends, and community. I am thankful to navigate this beautiful life with my husband, Josh, twin sons, and daughter. My children are very involved in sports and activities so I am their biggest fan in all they pursue and value the conversations and time and spent driving them all over this land! I love to travel, cozy up with a good book, and spend time with loved ones.
Grant Coordinator
Drawn to the organization's mission and the dedication of its staff to celebrate and improve the lives of all individuals, I joined DSACK's team as the office coordinator and am now their Grant Coordinator.
I hold graduate degrees in both education and biology, and I believe in the power of collaboration to bring about positive change. Having previously worked as an educator with other Lexington-based nonprofit organizations, I am deeply committed to building communities in which children and families are valued, supported, and experience a strong sense of belonging.
I enjoy spending time with my three boys, husband, and two spirited dogs. I love being outdoors—whether it's playing in my flower garden, hiking in green spaces, or cheering from the sidelines of a soccer field.
Kathryn Wallingford
Drawn to the organization's mission and the dedication of its staff to celebrate and improve the lives of all individuals, I joined DSACK's team as the office coordinator and am now their Grant Coordinator.
I hold graduate degrees in both education and biology, and I believe in the power of collaboration to bring about positive change. Having previously worked as an educator with other Lexington-based nonprofit organizations, I am deeply committed to building communities in which children and families are valued, supported, and experience a strong sense of belonging.
I enjoy spending time with my three boys, husband, and two spirited dogs. I love being outdoors—whether it's playing in my flower garden, hiking in green spaces, or cheering from the sidelines of a soccer field.
Administrative Assistant
I have worked at DSACK since completing the We Work! Career Planning Initiative in 2016. I moved to Lexington in 2015 from Camden, Arkansas, where I graduated from Camden Fairview High School.
I am the administrative assistant with a lot of responsibilities. I love what I do in preparing for meetings, taking notes, and helping create the website. I also help with routine office tasks, represent DSACK at events, take on special projects, and advocate for people with Down syndrome. I work three hours, two days a week. I am so proud of working for DSACK.
Emily Wright
Board of Directors
Margot Schenning, ChairPerson
Teacher-The Lexington School
Caryn Sorge, Chair-Elect
Parent of a Child with Down Syndrome
Pediatric Oncologist at University of Kentucky
Lee Ann Mullis, Treasurer
Parent of a Child with Down Syndrome
CFO at Stewart Home and School
Shawn Fear, Secretary
Parent of a Child with Down Syndrome
Retired from ConAgra Foods
Christopher Azbell
Otolaryngologist at UK Healthcare
Jessica Bosley
Family Member
SLP-Fayette County Schools
Anna Bullard
Social Worker at UK Children's Hospital
Elizabeth Clevinger
Parent of a Child with Down Syndrome
Counsel for Tax & Risk at Valvoline
Nikki Davidson
Pediatric Neurologist at Baptist Health/Pediatrix
Brandie Dawson
Senior Director, HR at Valvoline
Vinay Patel
Parent of a Child with Down Syndrome
Engineer, Corning, Inc.
Stephanie Taylor
Parent of a Child with Down Syndrome
Counselor, Fayette County Schools
Mike Wedding
Parent of a Child with Down Syndrome
Project Manager at Messer Construction
© 2022 Down Syndrome Association of Central Kentucky