Perhaps you have just heard the news that someone you love has a diagnosis of Down syndrome. First, congratulations to you and your family and welcome to this journey of acceptance and joy. DSACK is here to meet you wherever you are on your unique journey and to assure you that any emotion you may be feeling is completely normal. Generally, families move from an initial stage of shock and sorrow, to a period of adjustment and acceptance, then finally to joy as they get to know this baby personally. You can always contact us at DSACK and we can support, educate, and celebrate with you and your family at every stage, every day. Contact us at email@example.com or 859-494-7809.
Congratulations on the birth of your grandchild!
We know it can be challenging at the beginning to cope with the fears of what Down syndrome might mean for your family. Finding out your grandchild has Down syndrome can result in a double-dose of worry: concern for your grandchild and also concern for your own child. Many other grandparents have experienced those fears, too, but as they have gotten to know their grandchildren, most have come to accept and love them and to find joy in watching them develop their own unique talents. We hope you will find encouragement from the positive experiences of other grandparents, and we welcome you to get involved with DSACK!
You are always welcome to contact our office. We are available to answer questions, support, educate, and celebrate with you and your family. Just contact DSACK at firstname.lastname@example.org or 859-494-7809.
DSACK’s “A Grandparent’s Guide to Navigating Life with a Grandchild with Down Syndrome” can be found here.
In any family, each sibling is unique, important, and special. So are the relationships they have with each other. Brothers and sisters influence each other and play important roles in each other’s lives. Sibling relationships make up a child’s first social network and are the basis for his or her interactions with people outside the family. See more here: https://www.parentcenterhub.org/siblings/
“Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome” has a chapter “Preparing Your Other Children.” You can download this book for free or purchase a hard copy at http://downsyndromepregnancy.org/book/diagnosis-to-delivery/
Additional resources about sibling perspectives on having a brother or sister with Down syndrome can be found here: http://downsyndromepregnancy.org/sibling-perspectives-on-down-syndrome/
Do you have a family member or friend who has just received a diagnosis of Down syndrome for their child? You may not be aware that what you say and do, at this critical time, even when meant with the best intentions, could be hurtful. Here are a few "Dos" and "Don'ts" that parents of children with Down syndrome suggest:
What is Person/People First Language? How do I refer to someone who has Down syndrome?
People First Language was developed to respectfully speak about people with disabilities. The number one focus of PFL is putting the person before his/her disability because the disability is only a small part of the whole person. PFL highlights a person’s strengths, abilities, and potential to succeed instead of labeling the individual or confining the person to an established stereotype.
Remember: concentrate on the person, not the disability! We say “a person with Down syndrome” – not a Down’s person.
To ensure inclusion, freedom, and respect for all, it's time to embrace People First Language
The Down Syndrome Association of Central Kentucky exists to celebrate our Down syndrome community, support individuals with Down syndrome and their families in our region, and educate ourselves and others about the true joys and challenges of Down syndrome.
We envision communities where people with Down syndrome are valued and included throughout their lives.
We support and educate families and professionals in Central and Eastern Kentucky. We do this through: providing customized presentations for parents, teachers, therapists, and medical professionals; publishing a quarterly magazine that celebrates accomplishments of individuals with Down syndrome and provides pertinent information for families and caregivers; providing peer presentations to schools, post-graduate and undergraduate classes, and the community about acceptance of those with Down syndrome and other disabilities; and hosting several celebrations throughout the year to bring together families and friends for support and advocacy.
The Down Syndrome Association of Central Kentucky has been helping and supporting families since 1993, when a small group of parents envisioned better opportunities for their children with Down syndrome. Today, that vision and our organization have expanded, enabling us to provide numerous programs and services.
© 2021 Down Syndrome association of central kentucky