Congratulations on the birth or upcoming birth of your baby! One of the most important things you can do is to get in touch with DSACK so we can offer support, celebrate with you, and introduce you to the many FREE services and programs we offer. Just fill out the New Family Welcome form found here, email us at Courtney.firstname.lastname@example.org or call 859-494-7809 to get started. We have a free expectant or new parent packet of information and gifts to give you. If you want, we can also help to connect you with other parents, answer questions you may have, etc.
Down Syndrome Pregnancy is a program administered by the National Center for Prenatal and Postnatal Resources to provide honest, compassionate, medically-reviewed, and informative support for those preparing for the birth of a baby with Down syndrome. The National Center also administers Brighter Tomorrows, an online resource for new and expectant parents, and Lettercase, a program for expectant parents first learning about prenatal screening/testing and a Down syndrome diagnosis.
Lettercase.org: Lettercase’s featured resource is “Understanding a Down Syndrome Diagnosis.” It received input from representatives of National Society of Genetic Counselors, the American College of Obstetricians and Gynecologists, the American College of Medical Genetics, and the National Down Syndrome Society, and the National Down Syndrome Congress. It is available for free as a web app, and copies are available for purchase with medical practitioners being able to receive one free complimentary copy.
Downsyndromepregnancy.org: DSP, for short, is an online support resource for expectant mothers who have decided to continue their pregnancy after a prenatal test result. DSP provides a free, downloadable book, “Diagnosis to Delivery” that was written by mothers who received a prenatal diagnosis and has been reviewed by medical specialists. DSP maintains a blog with interactive comments on issues and questions expectant mothers may have. DSP also provides a helpful resource for family members, another free, downloadable booklet, “Your Loved One is Having a Baby with Down Syndrome.”
National Down Syndrome Adoption Network: The National Down Syndrome Adoption Network maintains a registry of families from across the nation who wish to adopt a baby with Down syndrome. Adoption is an option to consider in pregnancy management decisions following a prenatal test result, and NDSAN makes adoption a very viable option. For those practitioners and expectant couples interested in learning more, NDSAN is available to provide non-directive support. You can also visit DSACK’s link about Adoption.
“What Parents Wished They’d Known: Reflections on Parenting a Child with Down Syndrome” contains the responses of parents of a child with Down syndrome to the question, “What do you know now about parenting a child with Down syndrome that you wish you’d known from the start?”
The Down Syndrome Association of Central Kentucky exists to celebrate our Down syndrome community, support individuals with Down syndrome and their families in our region, and educate ourselves and others about the true joys and challenges of Down syndrome.
We envision communities where people with Down syndrome are valued and included throughout their lives.
We support and educate families and professionals in Central and Eastern Kentucky. We do this through: providing customized presentations for parents, teachers, therapists, and medical professionals; publishing a quarterly magazine that celebrates accomplishments of individuals with Down syndrome and provides pertinent information for families and caregivers; providing peer presentations to schools, post-graduate and undergraduate classes, and the community about acceptance of those with Down syndrome and other disabilities; and hosting several celebrations throughout the year to bring together families and friends for support and advocacy.
The Down Syndrome Association of Central Kentucky has been helping and supporting families since 1993, when a small group of parents envisioned better opportunities for their children with Down syndrome. Today, that vision and our organization have expanded, enabling us to provide numerous programs and services.
© 2021 Down Syndrome association of central kentucky