We hope DSACK will always be your “first call” for Down syndrome-related questions or issues, and we will always strive to help wherever and whenever we can. There are no fees to join DSACK or participate in our programs and services.
Congratulations on the birth or upcoming birth of your baby with Down syndrome. While the news of your child having Down syndrome may have come unexpectedly, your life will be full of many wonderful surprises and experiences. DSACK is here to meet you wherever you are on your journey – to celebrate with you and support you along the way.
According to DSACK’s 2017 Medical Outreach Survey, the most helpful support along the journey as a new parent is personal contact with DSACK. We hope you will reach out to DSACK so that we can support, educate, and celebrate with you. Contact us at Courtney.firstname.lastname@example.org or 859-494-7809. Or fill out our online New Family Welcome Form here.
“Receiving a prenatal diagnosis can be overwhelming for families, leaving them wondering what life is like for people living with the condition. ‘Understanding a Down Syndrome Diagnosis’ is often described as a lifeline for families learning about a diagnosis, and I believe, as did my mother, that expectant parents need that support and information right away.” – Tim Shriver, Ph.D. (Kennedy Foundation Trustee)
To download a free copy of “Understanding A Down Syndrome Diagnosis,” which contains accurate and up-to-date information about Down syndrome along with helpful resources, please click here. https://resources.lettercase.org/
Congratulations on your pregnancy!
Below are some helpful links to get you started on understanding more about prenatal screening and a diagnosis of Down syndrome. Be sure to also check out our section for New Diagnosis and New Parents for more information.
The Global Down Syndrome Foundation and the National Down Syndrome Congress have teamed up to publish the second edition of the groundbreaking prenatal testing pamphlet for Down syndrome, available in English, Spanish, and Icelandic. The second edition, created from the first national survey of pregnant women and medical professionals, is easily accessible electronically or in print at no cost.
Should I have testing? The decision whether to have a prenatal screening test or diagnostic test is a very personal one. Some women access these tests in order to gather more information about the chance for Down syndrome in their pregnancy, and/or so they can plan for the delivery of a child with Down syndrome. Others are comfortable proceeding without prenatal screening or diagnostic testing and decide that such tests are not necessary or not worth the risks. All of these tests are completely optional. If you have questions about any of these testing options, talk with your doctor, genetic counselor, maternal fetal specialist, or other health care provider about the risks, benefits, and limitations of these tests.
How to Decide about Prenatal Genetic Testing
The Down Syndrome Association of Central Kentucky exists to celebrate our Down syndrome community, support individuals with Down syndrome and their families in our region, and educate ourselves and others about the true joys and challenges of Down syndrome.
We envision communities where people with Down syndrome are valued and included throughout their lives.
We support and educate families and professionals in Central and Eastern Kentucky. We do this through: providing customized presentations for parents, teachers, therapists, and medical professionals; publishing a quarterly magazine that celebrates accomplishments of individuals with Down syndrome and provides pertinent information for families and caregivers; providing peer presentations to schools, post-graduate and undergraduate classes, and the community about acceptance of those with Down syndrome and other disabilities; and hosting several celebrations throughout the year to bring together families and friends for support and advocacy.
The Down Syndrome Association of Central Kentucky has been helping and supporting families since 1993, when a small group of parents envisioned better opportunities for their children with Down syndrome. Today, that vision and our organization have expanded, enabling us to provide numerous programs and services.
© 2021 Down Syndrome association of central kentucky